Журналов:     Статей:        

Валеология: Здоровье, Болезнь, Выздоровление. 2020; : 65-72

АНАЛИЗ ОРГАНИЗАЦИОННО-МЕТОДИЧЕСКИХ УСЛОВИЙ ОБУЧЕНИЯ ЛИЦ С ОСОБЫМИ ОБРАЗОВАТЕЛЬНЫМИ ПОТРЕБНОСТЯМИ

ДУЙСЕБЕК А. , ТУРГАМБАЕВА А. К., ДАУЛЕТОВА Г. Ш.

Аннотация

   Во всем мире инвалиды испытывают трудности с доступом к образованию, медицинским услугам и трудоустройству. Инвалидность является проблемой экономического развития, поскольку она связана с нищетой: инвалидность может увеличить риск бедности, а бедность может увеличить риск инвалидности. Все больше фактических данных свидетельствует о том, что дети-инвалиды и их семьи чаще, чем их сверстники, сталкиваются с экономическими трудностями, особенно в странах с низким и средним уровнем дохода. Приблизительно 15 процентов взрослого населения мира живет с той или иной формой инвалидности (WHO и World Bank 2011). Оценки распространенности инвалидности среди детей варьируются в широких пределах, поскольку методы их выявления в обследованиях различны. Эта разница обусловлена сложностью выявления детской инвалидности. Тем не менее, новые международные стандарты дают надежду на хорошее качество, сопоставимые на международном уровне данные в будущем. Дети с ограниченными возможностями реже посещают образовательные учреждения. Это снижает их возможности трудоустройства и производительность во взрослом возрасте.

Список литературы

1. Методическая рекомендация «Организация обучения детей с особыми образовательными потребностями по 8 категориям в условиях инклюзивного образования». – Астана, 2016. – Рекомендовано к изданию Ученым советом Национальной академии образования им. И. Алтынсарина (протокол № 8 от 18 сентября 2016 года).

2. Журнал «Валеология» 3 / 2018. – Статья: Образовательные программы для детей с кохлеарными имплантатами. Авторы:Медеулова А. Р., Кошербаева Л. К.,Нурбакыт А.)

3. Михайликова З. Семейное воспитание незрячего дошкольника / З. Михайликова. – Алматы: Раритет, 2014.

4. Книга «Дети с нарушениями общения». – Издательство «Просвещение». – Авторы: К. С. Лебединская, О. С. Никольская, Е. Р. Баенская, М. М. Либлинг, Р. К. Ульянова, Т. И. Морозова.).

5. https://informburo.kz/cards/inklyuzivnoe-obrazovanie-kak-v-kazahstane-uchat-detey-s-osobymi-obrazovatelnymi-potrebnostyami.html)

6. Годовой отчет за 2018 год Фонда развития социальных проектов SAMRUK - KAZYNA TRUST)

7. Социальная защита инвалидов в современном обществе Казахстана. – Журнал «Валеология». – 04/2017

8. Структура инвалидизирующих заболеваний детей. – Журнал «Валеология». – 01/2017

9. Законодательство и медико-соцальная помощь инвалидам. – Журнал «Валеология». – 04/2010

10. Sjöberg L., Nilsagard Y., Fredriksson C. Life situation of adults with congenital limb reduction deficiency in Sweden. Disabil Rehabil. 2014; 36 (18): 1562–1571. DOI: 10.3109/09638288.2013.854839 [PubMed].

11. Postema S. G., Bongers R. M., Brouwers M. A., Burger H., Norling-Hermansson L. M., Reneman M. F., et al. Upper Limb Absence: Predictors of Work Participation and Work Productivity. Arch Phys Med Rehabil. 2016; 97:892–899. DOI: 10.1016/j.apmr.2015.12.022 [PubMed] [Google Scholar]

12. Lankhorst I. M. F., Baars E. C. T., van Wijk I., Janssen W. G. M., Poelma M. J., van der Sluis C. K.. Living with transversal upper limb reduction deficiency: limitations experienced by young adults during their transitions to adulthood. Disabil Rehabil.2017; 39 (16): 1623–1630. DOI: 10.1080/09638288.2016.1206632 [PubMed] [Google Scholar]

13. Gold N. B., Westgate M. N., Holmes L. B. Anatomic and etiological classification of congenital limb deficiencies. Am J Med Genet A. 2011; 155A (6): 1225–1235. 10.1002/ajmg.a.33999 [PubMed] [Google Scholar]

14. Vasluian E., van der Sluis C. K., van Essen A. J., Bergman J. E., Dijkstra P. U., Reindres-Messelink H. A., et al. Birth prevalence for congenital limb defects in the northern Netherlands: a 30-year population-based study. BMC musculoskelet Disord. 2013; 14:323 DOI: 10.1186/1471-2474-14-323 [PMC free article] [PubMed] [Google Scholar]

15. Day H. J. The ISO/ISPO classification of congenital limb deficiency. Prosthet Orthot Int. 1991; 15(2): 67–69. [PubMed] [Google Scholar]

16. Hermansson L. Upper limb reduction deficiences in Swedish children. Classification, prevalence and function with myoelectric prostheses. PhD Thesis, Karolinska Institutet, University Hospital, Sweden; 2004.

17. Krantz O., Bolin K., Persson D. Stigma-handling strategies in everyday life among women aged 20 to 30 with transversal upper limb reduction deficiency. Scandinavian journal of disability research. 2008; 10(4): 209–226. [Google Scholar]

18. Vasluian E., de Jong I. G., Janssen W. G., Poelma M. J., van Wijk I., Reinders-Messelink H. A., et al. Opinions of youngsters with congenital below-elbow deficiency, and those of their parents and professionals concerning prosthetic use and rehabilitation treatment. PLoS ONE 2013; 8 (6): e67101 DOI: 10.1371/journal.pone.0067101 [PMC free article] [PubMed] [Google Scholar]

19. Vasluian E., van Wijk I., Dijkstra P. U., Reinders-Messelink H. A., van der Sluis C. K. Adaptative devices in young people with upper limb reduction deficiencies: use and satisfaction. J Rehabil Med. 2015; 47: 346–355. DOI: 10.2340/16501977-1922 [PubMed] [Google Scholar]

20. Johansen H., Østlie K., Andersen L., Ostlie K., Rand-Hendriksen S. Adults with congenital limb deficiency in Norway: demographic and clinical features, pain and the use of health care and welfare services. A cross-sectional study. Disabil Rehabil. 2015; 37(22): 2076–2082. DOI :10.3109/09638288.2014.998781 [PubMed] [Google Scholar]

21. Bö T. P. and Håland I. Funksjonshemma på arbeidsmarknaden i 2014 (Disabled people in the labor marknad in 2014). Reports 2014/36. Oslo: Statistics Norway, 2014.

22. Breivik H., Collett B., Ventafridda V., Cohen R., Gallacher D. Survey of chronic pain in Europe: prevalence, impact on daily life, and treatment. Eur J Pain. 2006;10 (4): 287–333. DOI: 10.1016/j.ejpain.2005.06.009 [PubMed] [Google Scholar]

23. Ricci J. A.,Chee E., Lorandeau A. L.,Bergern J. Fatigue in the US Workforce: Prevalence and implication for lost productive work time. JOEM. 2007; 49 (1): 1–10. DOI: 10.1097/01.jom.0000249782.60321.2a [PubMed] [Google Scholar]

24. Pransky G. S., Fassier J.-B., Besen E., Blanck P., Ekberg K., Feuerstein M., et al. Sustaining work participation across the life course. J Occup Rehabil. 2016; 26: 465–479. DOI: 10.1007/s10926-016-9670-1 [PMC free article] [PubMed] [Google Scholar]

25. Johansen H., Bathen T., Andersen L. Ø., Rand-Hendriksen S., Østlie K. Chronic pain and fatigue in adults with congenital unilateral upper limb deficiency in Norway. A cross-sectional study. PLoS ONE 13 (1): e0190567 DOI: 10.1371/journal.pone.0190567. [PMC free article] [PubMed] [CrossRef] [Google Scholar]

26. Burger H., Vidmar G. A survey of overuse problems in patients with acquired or congenital upper limb deficiency. Prosthet Orthot Int. 2016;40(4): 497–502. DOI: 10.1177/0309364615584658 [PubMed] [Google Scholar]

27. Postema S. G., Bongers R. M., Brouwers M. A., Burger H., Norling-Hermansson L. M., Reneman M. F. et al. Musculoskeletal Complaints in Transverse Upper Limb Reduction Deficiency and Amputation in The Netherlands: Prevalence, Predictors, and Effect on Health. Arch Phys Med Rehabil. 2016; 97 (7): 1137–1145. DOI: 10.1016/j.apmr.2016.01.031 [PubMed] [Google Scholar]

28. Johansen H., Østlie K., Andersen L. O., Rand-Hendriksen S., Ostlie K. Health-related quality of life in adults with congenital unilateral upper limb deficiency in Norway. A cross-sectional study. Disabil Rehabil.2016; 38 (23): 2305–2314. DOI: 10.3109/09638288.2015.1129450 [PubMed] [Google Scholar].

29. Kuorinka I., Jonsson B., Kilbom A., Vinterberg H., Biering-Soerensen F., Anderson G. et al. Standardised Nordic questionnaires for the analysis of musculoskeletal symptoms. Appl Ergon. 1987; 18 (3): 233–237. [PubMed] [Google Scholar].

30. Krupp L. B., La Rocca N. G., Muir-Nash J., Steinberg A. D. The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Arch Neurol. 1989; 46 (10): 1121–1123. [PubMed] [Google Scholar].

31. Lerdal A., Wahl A., Rustøen T., Hanestad B. R., Moum T. Fatigue in the general population: a translation and test of the psychometric properties of the Norwegian version of the fatigue severity scale. Scand J Public Health. 2005; 33 (2): 123–130. DOI: 10.1080/14034940410028406 [PubMed] [Google Scholar].

32. Dittner A. J., Wessely S. C., Brown R. G. The assessment of fatigue: a practical guide for clinicians and researchers. J Psychosom Res. 2004; 56 (2): 157–170. [PubMed] [Google Scholar].

33. Ware J. E. Jr. K. M., Gandek B. SF-36 (R) Health Survey; Manual & Interpretation Guide. Lincoln: Quality Metric Incorporated, 2005.

34. Johansen H., Andresen I.-L., Thorsen K. Adaptation of functional loss and pain in women with single-arm dysmelia. Ergoterapeuten (Oslo). 2014; 57 (5): 36–42. [Google Scholar].

35. Statistics Norway. Educationnal attainment of the population. https://www.ssb.no/en/univ/ (2017, accessed 20 September 2017).

36. Johansen H., Andresen I. L., Næss E. E., Hagen K. B. Health status of adults with Short Stature: A comparison with the normal population and one well-known chronic disease (Rheumatoid Arthritis). Orphanet J Rare Dis. 2007; 2:10 DOI: 10.1186/1750-1172-2-10 [PMC free article] [PubMed] [Google Scholar].

37. Wekre L. L, Frøslie K. F., Haugen L., Falch J. A. A population-based study of demographical variables and ability to perform activities of daily living in adults with osteogenesis imperfecta. Disabil Rehabil. 2010; 32 (7): 579–587. DOI: 10.3109/09638280903204690 [PubMed] [Google Scholar].

Valeology: Health - Illnes - recovery. 2020; : 65-72

ANALYSIS OF ORGANIZATIONAL AND METHODOLOGICAL CONDITIONS OF TRAINING FOR PERSONS WITH SPECIAL EDUCATIONAL NEEDS

DUYSEBEK A. , TURGAMBAYEVA A. K., DAULETOVA D. SH.

Abstract

   Throughout the world, people with disabilities have difficulty with accessing education, health services and employment. Disability is an economic development problem because it is linked to poverty: disability can increase the risk of poverty, and poverty can increase the risk of disability. There is growing evidence that children with disabilities and their families are more likely than their peers to face economic difficulties, especially in low-and middle-income countries. Approximately 15 percent of the world's adult population lives with some form of disability (WHO and World Bank 2011). Estimates of the prevalence of disability among children vary widely, because the methods of detecting them in surveys are different. This difference is due to the difficulty of detecting child disability. However, the new international standards offer hope for good quality, internationally comparable data in the future. Children with disabilities are less likely to attend educational institution. This reduces their employment opportunities and productivity in adulthood.

References

1. Metodicheskaya rekomendatsiya «Organizatsiya obucheniya detei s osobymi obrazovatel'nymi potrebnostyami po 8 kategoriyam v usloviyakh inklyuzivnogo obrazovaniya». – Astana, 2016. – Rekomendovano k izdaniyu Uchenym sovetom Natsional'noi akademii obrazovaniya im. I. Altynsarina (protokol № 8 ot 18 sentyabrya 2016 goda).

2. Zhurnal «Valeologiya» 3 / 2018. – Stat'ya: Obrazovatel'nye programmy dlya detei s kokhlearnymi implantatami. Avtory:Medeulova A. R., Kosherbaeva L. K.,Nurbakyt A.)

3. Mikhailikova Z. Semeinoe vospitanie nezryachego doshkol'nika / Z. Mikhailikova. – Almaty: Raritet, 2014.

4. Kniga «Deti s narusheniyami obshcheniya». – Izdatel'stvo «Prosveshchenie». – Avtory: K. S. Lebedinskaya, O. S. Nikol'skaya, E. R. Baenskaya, M. M. Libling, R. K. Ul'yanova, T. I. Morozova.).

5. https://informburo.kz/cards/inklyuzivnoe-obrazovanie-kak-v-kazahstane-uchat-detey-s-osobymi-obrazovatelnymi-potrebnostyami.html)

6. Godovoi otchet za 2018 god Fonda razvitiya sotsial'nykh proektov SAMRUK - KAZYNA TRUST)

7. Sotsial'naya zashchita invalidov v sovremennom obshchestve Kazakhstana. – Zhurnal «Valeologiya». – 04/2017

8. Struktura invalidiziruyushchikh zabolevanii detei. – Zhurnal «Valeologiya». – 01/2017

9. Zakonodatel'stvo i mediko-sotsal'naya pomoshch' invalidam. – Zhurnal «Valeologiya». – 04/2010

10. Sjöberg L., Nilsagard Y., Fredriksson C. Life situation of adults with congenital limb reduction deficiency in Sweden. Disabil Rehabil. 2014; 36 (18): 1562–1571. DOI: 10.3109/09638288.2013.854839 [PubMed].

11. Postema S. G., Bongers R. M., Brouwers M. A., Burger H., Norling-Hermansson L. M., Reneman M. F., et al. Upper Limb Absence: Predictors of Work Participation and Work Productivity. Arch Phys Med Rehabil. 2016; 97:892–899. DOI: 10.1016/j.apmr.2015.12.022 [PubMed] [Google Scholar]

12. Lankhorst I. M. F., Baars E. C. T., van Wijk I., Janssen W. G. M., Poelma M. J., van der Sluis C. K.. Living with transversal upper limb reduction deficiency: limitations experienced by young adults during their transitions to adulthood. Disabil Rehabil.2017; 39 (16): 1623–1630. DOI: 10.1080/09638288.2016.1206632 [PubMed] [Google Scholar]

13. Gold N. B., Westgate M. N., Holmes L. B. Anatomic and etiological classification of congenital limb deficiencies. Am J Med Genet A. 2011; 155A (6): 1225–1235. 10.1002/ajmg.a.33999 [PubMed] [Google Scholar]

14. Vasluian E., van der Sluis C. K., van Essen A. J., Bergman J. E., Dijkstra P. U., Reindres-Messelink H. A., et al. Birth prevalence for congenital limb defects in the northern Netherlands: a 30-year population-based study. BMC musculoskelet Disord. 2013; 14:323 DOI: 10.1186/1471-2474-14-323 [PMC free article] [PubMed] [Google Scholar]

15. Day H. J. The ISO/ISPO classification of congenital limb deficiency. Prosthet Orthot Int. 1991; 15(2): 67–69. [PubMed] [Google Scholar]

16. Hermansson L. Upper limb reduction deficiences in Swedish children. Classification, prevalence and function with myoelectric prostheses. PhD Thesis, Karolinska Institutet, University Hospital, Sweden; 2004.

17. Krantz O., Bolin K., Persson D. Stigma-handling strategies in everyday life among women aged 20 to 30 with transversal upper limb reduction deficiency. Scandinavian journal of disability research. 2008; 10(4): 209–226. [Google Scholar]

18. Vasluian E., de Jong I. G., Janssen W. G., Poelma M. J., van Wijk I., Reinders-Messelink H. A., et al. Opinions of youngsters with congenital below-elbow deficiency, and those of their parents and professionals concerning prosthetic use and rehabilitation treatment. PLoS ONE 2013; 8 (6): e67101 DOI: 10.1371/journal.pone.0067101 [PMC free article] [PubMed] [Google Scholar]

19. Vasluian E., van Wijk I., Dijkstra P. U., Reinders-Messelink H. A., van der Sluis C. K. Adaptative devices in young people with upper limb reduction deficiencies: use and satisfaction. J Rehabil Med. 2015; 47: 346–355. DOI: 10.2340/16501977-1922 [PubMed] [Google Scholar]

20. Johansen H., Østlie K., Andersen L., Ostlie K., Rand-Hendriksen S. Adults with congenital limb deficiency in Norway: demographic and clinical features, pain and the use of health care and welfare services. A cross-sectional study. Disabil Rehabil. 2015; 37(22): 2076–2082. DOI :10.3109/09638288.2014.998781 [PubMed] [Google Scholar]

21. Bö T. P. and Håland I. Funksjonshemma på arbeidsmarknaden i 2014 (Disabled people in the labor marknad in 2014). Reports 2014/36. Oslo: Statistics Norway, 2014.

22. Breivik H., Collett B., Ventafridda V., Cohen R., Gallacher D. Survey of chronic pain in Europe: prevalence, impact on daily life, and treatment. Eur J Pain. 2006;10 (4): 287–333. DOI: 10.1016/j.ejpain.2005.06.009 [PubMed] [Google Scholar]

23. Ricci J. A.,Chee E., Lorandeau A. L.,Bergern J. Fatigue in the US Workforce: Prevalence and implication for lost productive work time. JOEM. 2007; 49 (1): 1–10. DOI: 10.1097/01.jom.0000249782.60321.2a [PubMed] [Google Scholar]

24. Pransky G. S., Fassier J.-B., Besen E., Blanck P., Ekberg K., Feuerstein M., et al. Sustaining work participation across the life course. J Occup Rehabil. 2016; 26: 465–479. DOI: 10.1007/s10926-016-9670-1 [PMC free article] [PubMed] [Google Scholar]

25. Johansen H., Bathen T., Andersen L. Ø., Rand-Hendriksen S., Østlie K. Chronic pain and fatigue in adults with congenital unilateral upper limb deficiency in Norway. A cross-sectional study. PLoS ONE 13 (1): e0190567 DOI: 10.1371/journal.pone.0190567. [PMC free article] [PubMed] [CrossRef] [Google Scholar]

26. Burger H., Vidmar G. A survey of overuse problems in patients with acquired or congenital upper limb deficiency. Prosthet Orthot Int. 2016;40(4): 497–502. DOI: 10.1177/0309364615584658 [PubMed] [Google Scholar]

27. Postema S. G., Bongers R. M., Brouwers M. A., Burger H., Norling-Hermansson L. M., Reneman M. F. et al. Musculoskeletal Complaints in Transverse Upper Limb Reduction Deficiency and Amputation in The Netherlands: Prevalence, Predictors, and Effect on Health. Arch Phys Med Rehabil. 2016; 97 (7): 1137–1145. DOI: 10.1016/j.apmr.2016.01.031 [PubMed] [Google Scholar]

28. Johansen H., Østlie K., Andersen L. O., Rand-Hendriksen S., Ostlie K. Health-related quality of life in adults with congenital unilateral upper limb deficiency in Norway. A cross-sectional study. Disabil Rehabil.2016; 38 (23): 2305–2314. DOI: 10.3109/09638288.2015.1129450 [PubMed] [Google Scholar].

29. Kuorinka I., Jonsson B., Kilbom A., Vinterberg H., Biering-Soerensen F., Anderson G. et al. Standardised Nordic questionnaires for the analysis of musculoskeletal symptoms. Appl Ergon. 1987; 18 (3): 233–237. [PubMed] [Google Scholar].

30. Krupp L. B., La Rocca N. G., Muir-Nash J., Steinberg A. D. The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Arch Neurol. 1989; 46 (10): 1121–1123. [PubMed] [Google Scholar].

31. Lerdal A., Wahl A., Rustøen T., Hanestad B. R., Moum T. Fatigue in the general population: a translation and test of the psychometric properties of the Norwegian version of the fatigue severity scale. Scand J Public Health. 2005; 33 (2): 123–130. DOI: 10.1080/14034940410028406 [PubMed] [Google Scholar].

32. Dittner A. J., Wessely S. C., Brown R. G. The assessment of fatigue: a practical guide for clinicians and researchers. J Psychosom Res. 2004; 56 (2): 157–170. [PubMed] [Google Scholar].

33. Ware J. E. Jr. K. M., Gandek B. SF-36 (R) Health Survey; Manual & Interpretation Guide. Lincoln: Quality Metric Incorporated, 2005.

34. Johansen H., Andresen I.-L., Thorsen K. Adaptation of functional loss and pain in women with single-arm dysmelia. Ergoterapeuten (Oslo). 2014; 57 (5): 36–42. [Google Scholar].

35. Statistics Norway. Educationnal attainment of the population. https://www.ssb.no/en/univ/ (2017, accessed 20 September 2017).

36. Johansen H., Andresen I. L., Næss E. E., Hagen K. B. Health status of adults with Short Stature: A comparison with the normal population and one well-known chronic disease (Rheumatoid Arthritis). Orphanet J Rare Dis. 2007; 2:10 DOI: 10.1186/1750-1172-2-10 [PMC free article] [PubMed] [Google Scholar].

37. Wekre L. L, Frøslie K. F., Haugen L., Falch J. A. A population-based study of demographical variables and ability to perform activities of daily living in adults with osteogenesis imperfecta. Disabil Rehabil. 2010; 32 (7): 579–587. DOI: 10.3109/09638280903204690 [PubMed] [Google Scholar].